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by Judy Cropp
Fetal Alcohol Syndrome/ Alcohol-Related Neurodevelopment Disorder (FAS/ARND) has long been underdiagnosed and misunderstood. All too often good techniques used by great parents and professionals fail to demonstrate expected changes in those with FAS/ARND. When unwanted behaviors continue to escalate, what often results is an increase in the frequency and duration of consequences. The end result is increased levels of burnout due to unmet expectations of parents and professionals and increased frustration for children with FAS/ARND.
As people begin to make the link between brain damage and behavior, they are able to change expectations of their children and themselves. When this shift happens, success stories begin to surface. Below are listed a few vignettes describing events before receiving information about brain damage due to FAS/ARND and how changes begin to happen after this information has been incorporated.
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Before information about FAS/ARND: Johnny was a fourth-grade-student with ARND and his behaviors were increasingly frustrating. For example, after a two-week break for Christmas vacation, Johnny walked into his school and had a look of confusion on his face. He had forgotten the location of his locker, where his classroom was located, and what his teacher's name was. As the guidance counselor approached Johnny, she asked him to hang up his coat and go to his classroom. Johnny promptly looked up at the counselor and said that he didn't know which way to go. The counselor shook her head, placed her hand on his shoulder, and firmly repeated her instructions. Johnny then looked up at the woman and said, "But I don't know which way to go". Out of patience, the counselor stated to Johnny, "Of course you know which way to go, now get there before you are late and have to stay in from recess!". Johnny began crying and the counselor became increasingly frustrated with him. It made no sense that Johnny wouldn't remember where his classroom was. After receiving information about FAS/ARND: This is a good example of a scenario that commonly happens prior to people getting information about brain damage from prenatal exposure to alcohol and other drugs. After attending workshops about FAS/ARND, this school counselor was able to link Johnny's prenatal history with his confusing behaviors and everything began to make sense. Only then was she able to adjust her expectations and ask Johnny what would help him reorient himself to the school surroundings. This different way of thinking supported Johnny and contributed to the prevention of high frustration levels for Johnny and the counselor. Below are examples of behaviors we may see and a description of neurodevelopmental characteristics that are commonly associated with FAS/ARND. When considering these brain differences and working with children with FAS/ARND differently, positive changes begin to happen. Behaviors we might see due to Johnny's confrontation with his school counselor:
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