| Date | Thu Sep 26 06:52:58 2002 |
| Name | amy hullmann |
| URL |
| Comments: |
| Date | Sun Sep 29 23:09:00 2002 |
| Name | Daniel Hillestad |
| dirtysanchez08@excite.com | |
| URL |
| Comments: |
| Date | Fri Oct 4 23:23:43 2002 |
| Name | Marilyn Frye |
| mfrye@telusplanet.net | |
| URL |
| Comments: |
| Diane, saw you first in 1999 in Calgary Alberta. Was so relieved to find that I wasn't the only b mom out there. Since then, I've emersed myself in learning as much as I can in all aspects of FASD. With 17 years of experience, I now feel confident in helping other parents, caregivers in their journeys with their children. Thanks for continuing with this issue that is so important for today's and future generations. |
| Date | Wed Oct 9 08:03:30 2002 |
| Name | Brandon Tuck |
| skipperdick327@yahoo.com | |
| URL |
| Comments: |
| i put in a seach for fetal Alcohol syndrome and came across your website. It is very informative and useful for my project i am currenlty working on!!! thank you brandon tuck |
| Date | Sun Oct 20 08:56:53 2002 |
| Name | Janie Sibley |
| dajasib@earthlink.net | |
| URL |
| Comments: |
| Thank you for such an informative website! |
| Date | Sat Oct 26 12:43:35 2002 |
| Name | Mandi Grice |
| sweet_bacon@yahoo.com | |
| URL |
| Comments: |
| I really enjoyed this page. I am a junior and college and am now working on a project about FAS and this was helpful. |
| Date | Wed Oct 30 13:38:28 2002 |
| Name | Brenda K. Kaufman |
| oldshoe7@hotmail.com | |
| URL |
| Comments: |
| I am the mother of three adopted children who have been diagnosed with FAS and or FAE. I am looking for any information to help them. I too have felt there has been a missing link with my older child. He has been diagnosed with so many disorders and has been on so many different medications. Sometimes they seam to work and then they don't. I have adopted Nancy Thomas' parenting techniques which has helped tremendously. Thank you for your time. Brenda Kaufman |
| Date | Thu Oct 31 21:37:43 2002 |
| Name | Adriana |
| abungeebabe@yahoo.com | |
| URL | http://pages.ivillage.com/adrianabee |
| Comments: |
| Thank you for this site, for now I can better understand the complexities of my friend's behavior. I am often bewildered as to why he puts jelly in the cupboard, and various strange things in the fridge. I am grateful to have known two special sibling girls, Ashley and Tiffany, before him; with FAS and FAE (respectively); to remind me the love and affection is more important than the bewildering things. I love Jacob's sense of humor, his playfulness, his love for the Lord; and his heart for trying to do the right thing, even when he doesn't know what is right. I love that he cares to try, which is more than I can say for a lot of "normies." I frequently don't know what to do with Jacob, but I leave it up to God to give me good sense and presiding love in dealing with Jacob, and patience is never more a virtue than in situations such as this. Thank you, Ashley and Tiffany for teaching me how frustrating it is to have FAS/FAE, so that I can remember to respond to Jacob and others, in love; as they now need to do for me, since I have been diagnosed with acquired brain damage. |
| Date | Fri Nov 8 08:02:44 2002 |
| Name | Ardie Miller |
| amiller@aea9.k12.ia.us | |
| URL | www.aea9.k12.ia.us |
| Comments: |
| I would be interested in any of your powerpoint presentation files, especially with photos, charts, and diagrams as well as the diagnostic grid. |
| Date | Sat Nov 9 19:21:27 2002 |
| Name | Terencia K. Beauvais-Nikl |
| NursAdvocate@aol.com | |
| URL |
| Comments: |
| Thank you so much for all you've included on your web site. I'm looking for the publication "Taming the Tiger". Do you still publish it? Thank you in advance for responding. |
| Date | Sat Nov 9 21:21:12 2002 |
| Name | Cathy Petrie |
| petrie@mtaonline.net | |
| URL |
| Comments: |
| I have been searching through basic FASD information to find material to send to family members, who haven't a clue what we have been going through with our 18 year old adopted son. They hear the horror stories, and send well-meaning poems and other writings, all of which tell me that they need to be educated. Our son has static encephalopathy, hyperactivity, learning difficulties, and bipolar disorder. If he can get through high school (alternative school setting), we will breath a sigh of relief. He has a court appointed guardian, is working with the state Vocational Rehabilitation program, and we have applied for SSI and developmental disabilities assistance. He wants to be independent, and we try to let him be so, but it usually turns into a disaster. How does one explain all of this to bystanders, who often think the youngster only needs more discipline. We are exausted. Thank you for your website and the information you make available to the rest of the world. |
| Date | Wed Nov 13 12:39:02 2002 |
| Name | kate Justen |
| kjusten@rseden.org | |
| URL |
| Comments: |
| Date | Fri Nov 15 06:25:39 2002 |
| Name | Karen Crowl-Johnson |
| karencrowl@hotmail.com | |
| URL |
| Comments: |
| Thanks for everything Karen Johnsn |
| Date | Mon Nov 18 05:09:40 2002 |
| Name | Sue Hakanson |
| jshakanson@juno.com | |
| URL |
| Comments: |
| Date | Tue Nov 19 14:53:20 2002 |
| Name | Diana Anderson |
| Anderflo@corecomm.net | |
| URL |
| Comments: |
| Hi! I'm a step-mom that is incredibly stressed out trying to help a step-daughter that seems "un-helpable!" We know that her mom drank during the pregnancy -- she's been to many doctors and I still have received no help! Please help! I need to know how to get her diagnosed so that we can stop some of the craziness that is happening. Any info is really appreciated! Thanks. Diana Anderson |
| Date | Mon Nov 25 13:37:30 2002 |
| Name | Lynn George |
| georgelynn@attbi.com | |
| URL |
| Comments: |
| Diane, I was referred to you by Paul Guastadisegni.My husband and I have two addopted sons. Bio brothers 3 almost four and 8 almost 9.He just did an assessment on the 3 yr. old and looks very possibly fae.My 8 year old has been dianosed with everything but fae.and he now attends Edgefield childrens services day treatment program.To make a long story short I would like to contact you and talk about my boys in depth and see if we would qualify for some services.I'll be getting my report from Dr. Paul within the week.So I'm just introducing myself to you and getting some info off your websight.Thanks Lynn George |
| Date | Wed Dec 4 10:37:17 2002 |
| Name | sharon gleason |
| sharonxo@attbi.com | |
| URL |
| Comments: |
| Thank you for your work! I am a nurse who cares for a 12 yo with FAS, sites such as your are a great help! Thanks! I will tell some others about you. |
| Date | Sun Dec 8 13:10:45 2002 |
| Name | Cathy Taylor |
| MTa5914673@aol.com | |
| URL |
| Comments: |
| trying to learn |
| Date | Sat Jan 11 14:15:34 2003 |
| Name | marie l heys |
| mlheys@umich.edu | |
| URL |
| Comments: |
| I want to buy some copies of "Trying Diffferently Rather Than Harder" |
| Date | Thu Jan 16 18:40:04 2003 |
| Name | Dianne Bentley |
| revdbentley@hotmail.com | |
| URL |
| Comments: |
| This site is great! A question if I may: could anti-spasmodic drugs used by an MS patient lead to this type of FAS behavior / physical characteristic? They were used during pregnancy to control her muscle spasms and rigidity and muscle tremors. |
| Date | Tue Jan 21 09:38:13 2003 |
| Name | Jackie |
| sweetinnocent1720022002@yahoo.com | |
| URL |
| Comments: |
| I did a project on Fetal Alcohol Syndrome and all I needed was what Educational Attainment(like what kinds of schools they can go to.) |
| Date | Wed Jan 29 07:27:36 2003 |
| Name | J A C K C O N O V E R |
| URL |
| Comments: |
| Date | Wed Jan 29 07:30:10 2003 |
| Name | J A C K C O N O V E R |
| carljack@sisna.com | |
| URL |
| Comments: |
| Are you a support group or an information source? I would like to participate bt I didn't see any heading on the home page that would allow that J A C K |
| Date | Fri Feb 7 10:51:37 2003 |
| Name | Ron & Gayl Felix |
| r.felix@att.net | |
| URL |
| Comments: |
| We are foster parents of a FAS/FAE child and are looking for more information. |
| Date | Mon Feb 10 23:22:01 2003 |
| Name | Don Straathof |
| don_straathof@applesbc.bc.ca | |
| URL |
| Comments: |
| I am a Child and youth care worker in the Vancouver School Board working in a gr.8-9 classroom specifically set up for adolescents withFAS/E. (the second year of a pilot project) I have a two year diploma in CYC and am in the process of attaining a undergraduate degree in CYC from the Univ. of Victoria, B.C. I found a draft of Diane's article A Poor Fit: ......for Iceberg,April 1977 which has turned on a huge light for me in regards to working with my kids in the class. Thank you so much Diane for a wonderful article. The need for a real paradigm shift in the way we look at the needs of our clients is definitely something I face every day. I often saw how interventions based on learning theory did not work for these kids ( reading Alfie Kohn's book Punished by Rewards convinced me further of the dubious effects of this approach) but when you state the likelihood of causing further dameage by using this approach I realized the need for other intervention ways. We have in the class a student who I feel is now hitting a real wall (along with his caregivers and other supports) due to the secondary symptoms you speak of in the article. These secondary symptoms and problems asociated with his primary diagnosis are reaching critical levels and I am wondering about what a possible next step could be. I have passed on your article to members of his care team and will follow up by inviting myself to the next meeting. But it would be good if I could ask you for your input into my thinking that I should advocate a move for this student to a place called the Maples in Burnaby, BC which is a mental health care facility for teens that uses interventions based on attachment theory. I know the details are sketchy in what I can give you about this case but does this seem like a reasonable avenue to consider ?. I know there is options there for educating the client's supports to the attachment theory approach which I thought may provide an opportunity for facilitating an approach that looks at changing the environment rather than the presenting behaviours. I really would appreciate some feedback on this case if it is not too sketchy to warrant a reply. I am also interested in any articles that you could point me towards that would be helpful in my considerations of this case. I have put my self on your guest list in the hopes that I would be informed about possible workshops, lectures, or presentations that you would be giving in the Greater Vancouver area and hope I have a chance to meet you in person some time in the future. Thank you so much for your work so far and for considering my case if you have the time Take care, Most Respectfully yours Don Straathof |
| Date | Wed Feb 19 16:44:53 2003 |
| Name | Theresa Pressley |
| pressleys@cableone.net | |
| URL |
| Comments: |
| We adopted a child with ARND. |
| Date | Wed Feb 19 16:46:49 2003 |
| Name | Deborah Dee St James |
| UniqueBlend@familysafeweb.net | |
| URL |
| Comments: |
| Thank you for being such a blessing to me today! This is the missing piece to my families dynamics! Keep up the good work! |
| Date | Sat Mar 1 10:26:36 2003 |
| Name | Karen Martin |
| www.RNKMart@aol.com | |
| URL |
| Comments: |
| I am an RN who has worked with FAS children for many years. I would like to speak to groups, daycares and generally any one who will listen. I am working on my own presentation, but I would like to take classes, attend seminars etc. I live close to Chicago. Can anyone provide info? |
| Date | Wed Mar 5 21:44:42 2003 |
| Name | Beth Weston |
| weston@saltspring.com | |
| URL |
| Comments: |
| We are foster parents of a 16 year old who has been diagnosed with FASD. She has average to slightly above average intelligence when tested but a low adaptive score. She plays piano and violin at a grade 9 level. It is very difficult to get support for puselves as well as good psyciatris help for her. |
| Date | Fri Mar 7 15:13:33 2003 |
| Name | Don Straathof |
| don_straathof@applesbc.bc.ca | |
| URL |
| Comments: |
| Hello Diane and thank you so much for your paper that I recieved through the grapevine "Caring and Coping" which you presented at Univ. of Victoria BC, Canada on Feb.18-19,2000. I am presenting a mini workshop at my workplace on FAS/e as part of my course work for my degree in Child and Youth Care from U.Vic.which will contain references to your work. While doing research for may paper and presentation I came across info. on Attachment Theory approaches to dealing with teens with behavioural problems. To me this seems to be an appropriate intervention "fit" for the FAS/E kids I work with. Could you give me some feedback on this idea? Any other options you could reccommend I look into in my search for success for my teens with FAS/E? |
| Date | Sun Mar 9 10:02:03 2003 |
| Name | Carol Delafontaine |
| trcdela@aol.com | |
| URL |
| Comments: |
| My 8 year son was just diagnosed with Static Encephalopathy, something I suspected since adopting him at 3months. He has been having trouble in school and was diagnosed at age 4 with sensory integration and received OT for 3 years for 1 hour each week. We now live in Arizona and the services are minimal. Any clinics, resources that you know of nearby to assist? |
| Date | Wed Mar 12 10:27:16 2003 |
| Name | Sherri |
| heluva76@yahoo.com | |
| URL | http://www.1heluva.com/cgi-bin/join.cgi?refer=17476 |
| Comments: |
| THIS IS A WONDERFUL WEBSITE AND YOU ARE DOING GREAT WORK HERE. |
| Date | Mon Mar 17 18:22:22 2003 |
| Name | Kimberly |
| deremint@sbcglobal.net | |
| URL |
| Comments: |
| I need help to find a good group to help my son and I.He is 16yr`s old and has F.A.S.and A.D.H.D. Thank you; Kimberly |
| Date | Tue Mar 25 07:30:45 2003 |
| Name | Renae Richards |
| scanna@telus.net | |
| URL |
| Comments: |
| I am a Community Rehab worker in Medicine Hat,Alberta, Canada working in an agency which specializes in adults with developmental disabilities. We have a team within the agency which specializes in FASD. I am part of that team and participate in the training of new staff for the FASD team. |
| Date | Fri Apr 4 06:32:23 2003 |
| Name | Shannon M. Featherly |
| mariefeatherly@yahoo.com | |
| URL |
| Comments: |
| i'm looking for help for my 11 year old - i've recently realized that his ADHD is only a symptom |
| Date | Sun Apr 6 10:34:49 2003 |
| Name | Roseanne Knowles |
| randrknowles@attbi.com | |
| URL |
| Comments: |
| I worked with Connie Sernio and she helped save my sanity with my FAE child...Thanks for your insite and training |
| Date | Sun Apr 6 20:46:32 2003 |
| Name | James K. Faris, CDSC, MA and almost Ph.D. |
| jfaris@gci.net | |
| URL |
| Comments: |
| Being involved with FAS for more years then I would enjoy to talk about, I must say good job in what services you are providing. Keep it up, I was sure by now us humans would have known better, but all I have to do is go out in the "BUSH" in Alaska and it is still there. If there is any way I can help please do not forget my E-mail address and name. A fellow student in Capella University in PSY 7360, oh boy what a class! |
| Date | Tue Apr 22 18:00:29 2003 |
| Name | Teri Nelson |
| terinelson3030@msn.com | |
| URL |
| Comments: |
| I would like to know more about how the program works? |
| Date | Mon Apr 28 10:36:14 2003 |
| Name | Sandra A. Schafer |
| schafersandra@paris.com | |
| URL |
| Comments: |
| Good Morning Diane: We met when I was house sitting Keith's floating home last summer. My last project took me out of town every week. However, my new project will keep me local. We had spoken about the possibility of me assisting your program with my marketing experience. If you are still interested, please contact me. As I had mentioned when we met, my 33 year old adopted son is affected by FAS. He continues to be a challenge to himself,our family and his wife and children. What resources can you recommend to us for approaching this situation now that he is no longer a child but continues to stretch our patience? Also, are there any support groups for parents and spouses of FAS adults? You can contact me either by e-mail or 503.351.2477. I am looking forward to assisting FASCETS in any way possible. Sincerely, Sandra |
| Date | Fri May 2 06:57:50 2003 |
| Name | Harry Band |
| harryband@viens.com | |
| URL | http://www.memoiren-der-deutschen-mark.de |
| Comments: |
| Hello, my english is not good, but I want tell you, that I enjoyed your website really a lot. Harry from Kassel, Germany |
| Date | Tue May 6 16:06:16 2003 |
| Name | Kimberly A Patton |
| christychop@aol.com | |
| URL |
| Comments: |
| Hi my name is Kim Patton and I am adopting a child with FAS. I just wanted to know if there is a support group for moms. She is going to be 4 in july and has a feeding tube. thanks for your time. Regards, Kim Patton |
| Date | Wed May 7 00:15:58 2003 |
| Name | Ric Iannolino |
| converge@ptialaska.net | |
| URL |
| Comments: |
| I would like to order the book by Diane Malbin, Diane: Trying differently rather than harder, 1999. Currently available through FASCETS. |
| Date | Thu May 15 05:55:36 2003 |
| Name | Beth Abrams |
| firewhite@aol.com | |
| URL |
| Comments: |
| I am doing a report on FAS I would love to learn more about the problem in the US or any where. If any one can help please email me at firewhite@aol.com |
| Date | Thu May 15 07:45:26 2003 |
| Name | andrea cramer |
| andycramer115@hotmail.com | |
| URL |
| Comments: |
| Date | Thu May 15 23:56:14 2003 |
| Name | Misty LaPine |
| mrlapine@attbi.com | |
| URL |
| Comments: |
| Diane, Thanks for giving time to the medical foster parents of Multnomah county. Wonderful training and refresher. I have 5 fasd kids. Today was a great reminder to keep it simple. Again thanks, Misty |
| Date | Fri May 16 15:26:58 2003 |
| Name | Connie D. Green |
| connie185@excite.com | |
| URL |
| Comments: |
| I went to a workshop in the summer of 2000 in Emporia, Kansas. I am now teaching special education in Smith Lake, NM on the Navajo Reservation. |
| Date | Fri May 23 10:21:23 2003 |
| Name | Eileen Kelly |
| eileenkelly@dwt.com | |
| URL |
| Comments: |
| I was at the training on May 15 and Ms. Malbin asked me for the name of a dentist who my daughter went to and he knew all about FAS/E. His name is Michael G. Page and he is at Gentle Dental. He rotates through the different offices. I highly recommend him. |
| Date | Mon May 26 20:42:02 2003 |
| Name | Tom Keith |
| tskesq@aol.com | |
| URL |
| Comments: |
| Have a 7 year old daughter(adopted) who I believe has FAS or FAE. Trying to find out as much info as possible. |
| Date | Mon May 26 20:42:12 2003 |
| Name | Tom Keith |
| tskesq@aol.com | |
| URL |
| Comments: |
| Have a 7 year old daughter(adopted) who I believe has FAS or FAE. Trying to find out as much info as possible. |
| Date | Tue Jun 17 08:09:19 2003 |
| Name | Kathy Sparhawk-Luthy |
| luhawk303@aol.com | |
| URL |
| Comments: |
| Date | Sat Jun 21 06:57:05 2003 |
| Name | Mary Clarke |
| mary.clarke@Tiscali.co.uk | |
| URL |
| Comments: |
| I would like to hear from anyone with advise about parenting a child with fas our son is 5 years old. any information about training would be appreciated |
| Date | Tue Jun 24 10:33:10 2003 |
| Name | Jeff Gilmar |
| j.gilmar@miikyaapii.net | |
| URL | miikyaapii.net |
| Comments: |
| This is a very interesting and helpful website for teachers. Thank you for taking the time to provide so much valuable information-especially stategies for working with children who have FAS/FAE. |
| Date | Tue Jun 24 16:22:03 2003 |
| Name | Gayle Haberman |
| gayle@sterling.net | |
| URL |
| Comments: |
| Date | Tue Jun 24 16:22:05 2003 |
| Name | Gayle Haberman |
| gayle@sterling.net | |
| URL |
| Comments: |
| Date | Tue Jun 24 16:25:40 2003 |
| Name | Gayle Haberman |
| gayle@sterling.net | |
| URL |
| Comments: |
| I heard about this site from a friend who discovered it in trying to get help in dealing with her children. I wish that I had had more information like this as I was dealing with my son through his developing years. Now he is 18, and though I'm still working to help him to be a successful independent adult, I've missed a lot of ground. So many counselors, teachers, doctors, and even psychiatrists will diagnose ADD/ADHD and medicate for that, but they don't do or say much in regards to fetal alcohol and drug problems. This is wonderful. |
| Date | Mon Jun 30 03:07:11 2003 |
| Name | HotCGIScripts.com |
| konstantin@hotcgiscripts.com | |
| URL | http://www.hotcgiscripts.com |
| Comments: |
| I found your web-site and I think you can be interested to upgrade some of your scripts or add new features that will improve your online business. For now I have the following scripts: Banner rotation script with many of features such as campaigns, sub-admins, a lot of banner types supported, online stats and many other. Mailing list manager script helps you to create your own subscribtions. Form creating wizard, bulk sending enabled, online stats, unlimited attaches and many other. File manager script helps you to create upload and download area on your site. Multiple users, admin area, limit to upload or download, secure and fast. You could find it here: http://www.hotcgiscripts.com/?c=cgi-scripts Best regards, Konstantin Rash |
| Date | Mon Jun 30 09:58:22 2003 |
| Name | Susan C. Pahl R.N. |
| pahlsue@juno.com | |
| URL |
| Comments: |
| Date | Tue Jul 8 18:11:59 2003 |
| Name | Shawn Carlow |
| cottonwoodcreek@telus.net | |
| URL |
| Comments: |
| Diane, I really enjoyed the training you provided on behalf of White Crow. I came out, looking at things quite differently. We just finished the second day of camp at Cowichan Lake and it is going really well. Kee looked so relaxed, I thought she was going to fall asleep standing up! Thanx again. |
| Date | Mon Jul 21 15:11:57 2003 |
| Name | claudia hutchison |
| chutchison@nwresource.org | |
| URL | www.orparc.org |
| Comments: |
| You know, I hope, that I think you do phenomenal work! I frequently refer families to your website, and to FASCETS. |
| Date | Tue Aug 5 16:19:43 2003 |
| Name | John Atkinson |
| atkinsonjt@shaw.ca | |
| URL |
| Comments: |
| A great site Diane. It provides a nice over view of where help can be obtained and a very useful bibliography for one's own education. I myself am still trying to find more efective ways of dealing with FASD youth and young adults and their contact with the legal system. On we march. Keep up the good work. |