| FASCETS Guest Book |
| Date | Wed Jun 03 1998 17:56:56 |
| Name | dawn hollenbeck |
| gndhollenbeck@juno.com | |
| URL |
| Comments: |
| HELP |
| Date | Wed Jun 03 1998 19:06:37 |
| Name | Kathy Dusener |
| rdusener@mb.sympatico.com | |
| URL |
| Comments: |
| Date | Fri Jun 05 1998 11:39:49 |
| Name | Joanne Thompson |
| joanne7@ix.netcom.com | |
| URL |
| Comments: |
| Date | Sat Jun 06 1998 19:21:39 |
| Name | Linda Duke |
| lindaloo45@aol.com | |
| URL | don't know |
| Comments: |
| thankyou for having all this information. I don't feel so alone now. |
| Date | Wed Jun 10 1998 07:31:52 |
| Name | cathy sproat |
| csproat@icenter.net | |
| URL |
| Comments: |
| I would like info on training materials to help staff and parents |
| Date | Thu Jun 18 1998 08:46:49 |
| Name | Jack Conover |
| carljack@cyberenet.net | |
| URL |
| Comments: |
| Anybody reading this wanting information about "faslink", a fabulous on line support group for anyone dealing with children with FAS/E This might include teachers, foster parents. Bio parents, grandparents, therapists, school administratorsand just about anyone with an interest in children |
| Date | Fri Jun 19 1998 19:22:53 |
| Name | kathleen laplant |
| dickl@c4.net | |
| URL |
| Comments: |
| I would like to be informed about whatever is out there concerning fas/fae as we are adopting four children with this condition and we are elementary educators. We would like to help our coworkers to understand fas/fae and how to better teach these children. |
| Date | Thu Jun 25 1998 17:13:46 |
| Name | karen wunderlich |
| karenwun@aol.com | |
| URL |
| Comments: |
| Public Health Nurse...thanks for putting together a great site. |
| Date | Fri Jun 26 1998 15:01:59 |
| Name | Paula Kramer |
| Tkramer136@aol.com | |
| URL |
| Comments: |
| Date | Sun Jun 28 1998 14:59:03 |
| Name | Patricia E. Buchanan |
| TAMMYSB@aol.com | |
| URL |
| Comments: |
| I would like information about providing inclusive educational program for first grade student with FAE |
| Date | Fri Jul 03 1998 14:57:54 |
| Name | nancy |
| godivas@html.com | |
| URL |
| Comments: |
| Interested in learning about adults with FAS or FAE |
| Date | Tue Jul 07 1998 12:58:10 |
| Name | Name removed upon request |
| e-mail address removed upon request | |
| URL |
| Comments: |
| We're adoptive parents of a young man with suspected F.A.S. and/or bipolar illness. Your site has very good educational resources. By the way, what is the actual (geographical) location of your organization? |
| Date | Thu Jul 09 1998 19:03:56 |
| Name | Julie Telgenhoff |
| philldaddy | |
| URL | www.aol.com |
| Comments: |
| I have a sister with a 10 yr old FAS boy. They have moved to Chicago and I am trying to find her some resources. |
| Date | Wed Jul 15 1998 13:51:05 |
| Name | Gene McQuade |
| emcquade@attmail.com | |
| URL |
| Comments: |
| Date | Wed Jul 15 1998 17:01:59 |
| Name | Susan O'Shea |
| Chtham | |
| URL |
| Comments: |
| Great site. Information we all can understand |
| Date | Thu Jul 16 1998 21:52:47 |
| Name | Leighton Meyer |
| rmeyer@telusplanet.net | |
| URL |
| Comments: |
| Hi Diane, |
| Date | Sun Jul 19 1998 00:24:08 |
| Name | Nancy Bain |
| mbain @ island.net | |
| URL |
| Comments: |
| Mind opening course, Diane. Thanks |
| Date | Fri Jul 24 1998 10:55:54 |
| Name | Heidi Noel |
| whart@orhc.com | |
| URL | Behavioral Health Seravices, ORHC. Ottumwa, Iowa |
| Comments: |
| I am interested in your work and am considering pursuing a career in this field. Please send me any pertinent information you have that would help me make some logical decisions about how I can pursue this Heidi Noel BA Counselor Family Recovery Center 312 E Alta Vista Ottumwa IA 52501 5156843170 |
| Date | Mon Jul 27 1998 17:16:55 |
| Name | tom guerin |
| guerin@open.org | |
| URL |
| Comments: |
| Date | Wed Jul 29 1998 23:09:21 |
| Name | Judy Alberts |
| judya@teleport.com | |
| URL |
| Comments: |
| I am the adoptive mom to an 8yr old FAE daughter Getting help for and me are next to impossible. The things that have been said to me are unreal I find there are very few who have any knowlege of this diab I have read Diane training manuel thanks to that I realized that I wasn't crazy and that I didn't hate my daughter like one therapist told my doctor because after all she was sooo sweet and cute. I am glad I finally found your website. Judy A West Linn Oregon |
| Date | Fri Jul 31 1998 22:40:13 |
| Name | Dan and Sandy Roberts |
| cavies@worldaccessnet.com | |
| URL | www.worldaccessnet.com/~cavies |
| Comments: |
| Our recently adopted 9 year old daughter from Russia looks like she may have FAE according to our psychologist. We are having a lot of problems dealing with her behavior. Just recently she dug her eye tooth out of her mouth with a spoon and said it didn't hurt. This has us concerned for her safety as well as the safety of our other two children. We want to make sure that we can get her and our family the help we need to teach Nadia how to live as normal a life as possible. |
| Date | Mon Aug 03 1998 19:18:56 |
| Name | Patricia Woodbury |
| pjwood@micron.net | |
| URL |
| Comments: |
| working on a research project for graduate degree. Thanks for the info! |
| Date | Wed Aug 05 1998 22:02:29 |
| Name | Pete |
| URL |
| Comments: |
| testing |
| Date | Sat Aug 08 1998 09:15:49 |
| Name | Jack and Carlyn |
| carljack@cyberenet.net | |
| URL |
| Comments: |
| Date | Wed Aug 12 1998 08:33:05 |
| Name | Gladys Stefany |
| stefany@pikeonline.net | |
| URL | http://www.come-over.to/fasstar/faspix/jessica.htm |
| Comments: |
| 2 new email lists have been created designed to provide support and an opportunity for sharing for children diagnosed with FAS or FAE and their siblings. To subscribe to the sibling list, go to http://www.onelist.com/subscribe.cgi/fassibs To subscribe to the list for individuals diagnosed with FAS or FAE go to http://www.onelist.com/subscribe.cgi/faskids |
| Date | Thu Aug 13 1998 10:51:56 |
| Name | Lisa Brady |
| slab@stc.net | |
| URL |
| Comments: |
| I adopted a child with FAS from a hospital where I used to work. As time goes on, life seems to be more of a struggle for our entire family. Coping is difficult not knowing if this is a child that is capable, but won't or a child that just can't. We've tried to deal with ourselves but have come to the conclusion we need help. |
| Date | Fri Aug 14 1998 19:20:37 |
| Name | Stephen Neafcy |
| styevenzoe@thurston.com | |
| URL | none |
| Comments: |
| Stephen Neafcy from: stevenzoe@thurston.com My Address: 930 Trosper Road Space# 9 Tumwater Wa. 98512-6997 I Am a 45yr old Adult Male who has been Dignosis with Fetal Alcohol Effects December 13, 1996 You may have heard of Sterling K. Clarren, M.D. He is Director of The Fetal Alcohol Syndrome Clinic In Seattle Wa. He is the the Doctor who Diagnosis me! So many pregnant woman decide to drink Alcohol during their pregnacy and it has a very severe impact on the unborn baby that this child has to live with for a lifetime! This moment of pleasure causes a liftime of heartache and expense for the Family and all Tax payers! This is called Fetal Alcohol Syndrome and Fetal Alcohol Effects, the purpose of me contacting You is we as a nation need to inform all woman and couples not to drink during pregnacy or who are trying to conceive! Please help Me get this message out, My life is a example of the misunderstandings that all Fas/er's I will be the voice for all The Children who have been Diagnosis with this! Will You Help me get this Quest Off the ground! Sincerely, Stephen Neafcy Phone# (360)352-3897 |
| Date | Tue Aug 25 1998 14:10:40 |
| Name | Gerald Bielecki |
| Gerryb1@aol.com | |
| URL |
| Comments: |
| We are adoptive parents of 12 yr old girl. Am interested in workshops, and any training material that would be useful for parents or teachers. Thank you. |
| Date | Thu Aug 27 1998 13:08:43 |
| Name | Nancy B. Webb |
| Webbhouse@aol.com | |
| URL |
| Comments: |
| Good site!!! |
| Date | Tue Sep 01 1998 18:10:39 |
| Name | c.joan oickle |
| cjoanoickle@ns.sympatico.ca | |
| URL |
| Comments: |
| our adopted son,now 23, was born drunk and is still paying a high price for his mother's addictive behaviour. he also has four brothers who suffer from fas. what a legacy |
| Date | Thu Sep 03 1998 08:52:20 |
| Name | Sue Truax |
| all8ofus@easnt.net | |
| URL | none yet |
| Comments: |
| My little boy is FAE need information to give to school. The think he is ADHD and FAE I tried to tell them he is FAE and ADHD |
| Date | Fri Sep 04 1998 07:58:35 |
| Name | Bruce Ritchie |
| netstorm@acbr.com | |
| URL | http://www.acbr.com |
| Comments: |
| Super site. I will add you to our links. |
| Date | Wed Sep 09 1998 10:45:33 |
| Name | Susan D. Elsom, Ph.D. |
| ella999@aol.com | |
| URL |
| Comments: |
| Date | Sat Sep 12 1998 16:45:19 |
| Name | Kirsten Hodges |
| Khodges035@aol.com | |
| URL |
| Comments: |
| I'm a first year middle school teacher. One of my students has FAS. I'm looking for anything I can to learn how to help him succeed in school. |
| Date | Tue Sep 15 1998 17:11:07 |
| Name | Frances Valentine |
| mitzie@neosoft.com | |
| URL | none |
| Comments: |
| just arrived. |
| Date | Tue Sep 15 1998 21:54:01 |
| Name | Gloria Armistead |
| coveretc@netactive.co.za | |
| URL |
| Comments: |
| We have put together over the last 6 months FASSA here in Cape Town South Africa were there are 3,500+/- babies being born a year, are aims and objectives are to create an awareness, keep it ongoing. To create a reasource center. A much needed multi racial support group and last but least a crisis centre for fas children with a drop in section and a respite bed. |
| Date | Tue Sep 15 1998 21:54:22 |
| Name | |
| URL |
| Comments: |
| Date | Wed Sep 16 1998 10:14:43 |
| Name | Lori McLarty |
| LMcLarty@aol.com | |
| URL |
| Comments: |
| Date | Wed Sep 16 1998 14:30:39 |
| Name | liz roy |
| URL | liz.a.roy@tgpl.twc.com |
| Comments: |
| Date | Wed Sep 16 1998 22:23:00 |
| Name | Sue Miers |
| miers@c0bweb.com.au | |
| URL |
| Comments: |
| Hi, I'm an Australian foster parent of a 17 year old daughter who we believe has FAE - unfortunately this disability is not yet recognised in Australia and we have so far been unable to find someone who is able to make a professional diagnosis. We have felt very alone over the last 16 years trying to deal with challenging behaviour that noone else seems to understand. That is, until I discovered the internet - it has been a lifesaver for us, so much so that I would know like to help other parents in Australia learn about this disablility. Have you had any other queries from people in Australia ? - I would love to be in contact with them if you have. |
| Date | Thu Sep 17 1998 17:59:15 |
| Name | Latosha Hodges |
| www.latoshath@hotmail.com | |
| URL |
| Comments: |
| Date | Thu Sep 24 1998 08:22:09 |
| Name | Janquela Marie Crenshaw |
| URL |
| Comments: |
| Date | Thu Sep 24 1998 14:33:30 |
| Name | Melody Montgomery |
| gsi03590@gsaix2.cc.gasou.edu | |
| URL |
| Comments: |
| Date | Tue Sep 29 1998 07:00:33 |
| Name | John J. Campbell, M.A., Public Health Analyst |
| jcampbel@samhsa.gov | |
| URL | http://www.samhsa.gov |
| Comments: |
| Date | Fri Oct 09 1998 09:03:22 |
| Name | carly coscia |
| Dolce2475@aol.com | |
| URL | n/a |
| Comments: |
| please send any information reguarding approaches to working with an adult with FAS. |
| Date | Fri Oct 09 1998 09:43:06 |
| Name | Leia Ann McClain |
| trescott@gunnison.com | |
| URL |
| Comments: |
| I am a future education with a special interest in fetal alcohol syndrome. I wish to someday work on a Native American Reservation and FAS is wide- spread there. I would like to know more about specific strategies (both in-class and out) that are used successfully with FAS children. |
| Date | Mon Oct 12 1998 16:27:39 |
| Name | Nancy Webb |
| Webbhouse@aol.com | |
| URL |
| Comments: |
| I think you need to get your schedule section up and running. I want to atten the FASCETS meetings on the 2nd Tues. but don't have the time and address. There are a lot of us out here so let's be sure and support each other. This is the job of a lifetime!!! Let's try to enjoy the good parts! It will all be worth it! |
| Date | Wed Oct 21 1998 08:45:31 |
| Name | Patti Royse |
| roysep@sequent.com | |
| URL |
| Comments: |
| Thank you for a great training at the Morrison Center on the FAS. It was very enlighting. |
| Date | Fri Oct 23 1998 05:45:24 |
| Name | Merrilee Keller |
| MKPrev@aol.com | |
| URL |
| Comments: |
| Excellent conference in Appleton, WI! Have a vision for a 'biggie' in the UP!! Will keep you posted. |
| Date | Mon Oct 26 1998 08:08:29 |
| Name | Cynthia B. Moore |
| cynbmoore | |
| URL |
| Comments: |
| parent of child with NBD of multiple origin, including FAS. also work with children's mental health collaborative and parent support group |
| Date | Tue Oct 27 1998 13:35:12 |
| Name | Lizamarie Strathdee |
| ase3@supernet.ab.ca | |
| URL |
| Comments: |
| Date | Tue Oct 27 1998 14:00:55 |
| Name | Cynthia Troutman |
| decjt@pcez.com | |
| URL |
| Comments: |
| I was so glad to hear you have a site. This information is so needed today...Keep up the good work! |
| Date | Fri Oct 30 1998 13:08:02 |
| Name | Sharyn Bowes |
| sharyn_bowes@hotmail.com | |
| URL |
| Comments: |
| So glad to see you online. My hopes are the same as yours that education will "push" people in -charge to make adjustments in their thinging. |
| Date | Fri Nov 06 1998 16:44:43 |
| Name | The Allen Family |
| poocs@bellatlantic.net | |
| URL |
| Comments: |
| I met Diane at the Lexington Ky. fen conference. It was one of the greatest experiences of my life. We adopted five children prenatally exposed to drugs and alcohol. Your message gave us hope. Thank you. |
| Date | Sun Nov 08 1998 22:09:53 |
| Name | DIANE SAVAGE |
| dianesavage@prodigy.net. | |
| URL |
| Comments: |
| We would like to find a support group in the Chicago, Illinois area. I really hope you can help us. |
| Date | Sat Nov 14 1998 06:58:01 |
| Name | Janice W. Rymer |
| gjrymer@access.mountain.net | |
| URL |
| Comments: |
| I am a foster parent of a baby girl that has AFS. As I have looked at the information on your site and read the signs of children with FAS I am concerned that the 3 children (siblings)we have adopted also have FAS. I would like to know some information on how to best help them restructure their thinking and overcome their problems. |
| Date | Sun Nov 15 1998 14:17:01 |
| Name | Chuck & Dana van Ormer |
| chuck@acfm.com | |
| URL |
| Comments: |
| Thank you for the information, we adopted our son Aaron (13 -AK Aleut) four years ago. This is a great help in being able to understand his behaviors and probles due to FAE |
| Date | Sun Nov 22 1998 13:20:31 |
| Name | sara boskovich |
| sdickbos@cnis.rpslmc.edu | |
| URL |
| Comments: |
| Date | Sun Nov 22 1998 15:39:00 |
| Name | Linda King |
| Puggins@aol.com | |
| URL |
| Comments: |
| This is a great place to find a lot of information on FAS for research papers, general information, etc. |
| Date | Sun Nov 22 1998 17:05:40 |
| Name | Gwen Burton |
| burton@n-link.com | |
| URL |
| Comments: |
| Is there any way for an adult to find out if they are FAE or FAS?? |
| Date | Wed Nov 25 1998 02:08:06 |
| Name | Larry George |
| owlwisegeorge@netscape.net | |
| URL |
| Comments: |
| I am a 41 year old Alaska Native, single parent of a FAS boy. He was my late sisters son. After she passed away, my wife of the time(1992) adopted him. I am currently working with the school system to prepare him for adult life. he just turned 17 11/10/98, in school his work is still at the 3rd to 4th grade level although he is a sophmore. |
| Date | Wed Nov 25 1998 12:20:40 |
| Name | b.j. brantley |
| blossom18_80@hotmail.com | |
| URL |
| Comments: |
| Date | Sat Nov 28 1998 09:05:07 |
| Name | Dayna Brown |
| jdkjbrown@feist.com | |
| URL |
| Comments: |
| adoptive mother of a 8year old daughter with FAS |
| Date | Mon Nov 30 1998 09:50:01 |
| Name | catherine Heiby |
| cheiby53@Yahoo.com | |
| URL |
| Comments: |
| I'm pretty sure my daughter has FAS. My husband and I adopted her over 16 years ago. She has a number of behavioral problems which do not seem to resolve no matter what I try to do. I've talked to her about FAS and some of the symptoms and she even believes she has it. How do I find out for sure? Where do I go next? Ms. Heiby |
| Date | Mon Nov 30 1998 18:23:04 |
| Name | Robert J Serena Sr |
| vietvet@kiski.net | |
| URL |
| Comments: |
| My adopted daughter has F.A.S. been dealing with it for 14yrs any help is a lot of help.Been to 10 to 15 different doctors(Phyc) wish there was more help out there. |
| Date | Wed Dec 02 1998 12:47:11 |
| Name | Fred Kemp, PhD |
| QuixoteFK@aol.com | |
| URL | NA |
| Comments: |
| I'm in private practice, see many FAS kids. |
| Date | Tue Dec 08 1998 22:17:56 |
| Name | Ralph Brown |
| rabrow1@sttl.uswest.net | |
| URL |
| Comments: |
| Date | Wed Dec 09 1998 15:59:10 |
| Name | ruby huisman |
| ruby.huisman@gems7.gov.bc.ca | |
| URL |
| Comments: |
| Diane I would still like to do that pre-employment assignment. Just got too busy this fall. |
| Date | Mon Dec 14 1998 13:08:39 |
| Name | Melinda Ohlemiller |
| mohlemil@slarc.org | |
| URL |
| Comments: |
| I am the director of an early intervention program in St. Louis. I am also the adoptive parent of a 5-year-old with FAS. |
| Date | Thu Dec 17 1998 20:51:41 |
| Name | Lois J. Bickford |
| jamaelle@aol.com | |
| URL |
| Comments: |
| Date | Sat Dec 19 1998 06:37:08 |
| Name | Danilie D Howe |
| ddhowe7@hotmail.com | |
| URL |
| Comments: |
| I am a special ed teacher of 36 years and would like to dedicate the rest of my mission to several aspects of FAS/E. Do you know of grant sources? |
| Date | Thu Jan 07 1999 19:26:44 |
| Name | Pat Chatterton |
| URL |
| Comments: |
| Date | Thu Jan 07 1999 19:28:20 |
| Name | Pat Chatterton |
| chatt@erols.com | |
| URL |
| Comments: |
| Need data on medication that may help ARND |
| Date | Thu Jan 07 1999 20:35:52 |
| Name | JUDY AND RANDY HOLTZ |
| rjholt@bc.sympatico.ca | |
| URL |
| Comments: |
| New viewers of the web. Have eighteen yr. old need info on trouble with not wanting to take his medications.Has f.a.s.,f.a.e.,a.d.h.d., and tourettes. Any info will be appreciated. Judy and Randy adoptive parents. |
| Date | Fri Jan 08 1999 18:40:34 |
| Name | Pam Willson |
| willson@web-access.net | |
| URL |
| Comments: |
| Date | Tue Jan 12 1999 08:36:36 |
| Name | Bruce Derryberry |
| bderryberry@gorge.net | |
| URL |
| Comments: |
| Mid-Columbia Foster/Adopt Parent Association |
| Date | Sat Jan 16 1999 16:07:56 |
| Name | Pat Chatterton |
| URL |
| Comments: |
| Date | Sat Jan 16 1999 16:07:56 |
| Name | Pat Chatterton |
| URL |
| Comments: |
| Date | Sat Jan 16 1999 16:11:41 |
| Name | Pat Chatterton |
| chattpp@erols.com | |
| URL |
| Comments: |
| Any help I can find on treatment plans for FAS/FAE would be appreciated. My son is being treated with medications I do not believe work. |
| Date | Mon Jan 18 1999 12:00:17 |
| Name | Cindi Harris |
| Cinderharr@aol.com | |
| URL |
| Comments: |
| information on a 7 year old with FAE (Behavior Problems) |
| Date | Tue Jan 19 1999 16:15:57 |
| Name | Candace Corkran |
| ccorkran@bayou.com | |
| URL |
| Comments: |
| Date | Wed Jan 20 1999 19:31:33 |
| Name | Susan DeRooy |
| Sderooy2@aol.com | |
| URL |
| Comments: |
| This is all very interesting to me. My mother was a alcoholic and drank when pregnet with me. I have stuggled all my life with some of the things you talk about in here. Do you have any services in Seattle Wa? |
| Date | Wed Jan 20 1999 22:19:06 |
| Name | Jan Webb |
| jwreno@madras.net | |
| URL |
| Comments: |
| Have a grandchild I'm raising with FAS, need help with him. Can't get any help where we live. |
| Date | Wed Jan 27 1999 11:30:28 |
| Name | susan Amys |
| sjamys@yahoo.com | |
| URL |
| Comments: |
| Date | Thu Jan 28 1999 14:28:21 |
| Name | Lyn Bradley |
| no email; use 248B E3rd St., Henderson, TN 38340 | |
| URL |
| Comments: |
| Exper FAS/E prevn; interested all aspects. Please mail info. Thanks. |
| Date | Thu Feb 04 1999 08:56:30 |
| Name | Richard E. Lumpp |
| lumppr@clarke.k12.va.us | |
| URL |
| Comments: |
| Parent of FAE children |
| Date | Fri Feb 05 1999 10:04:11 |
| Name | jenna |
| n/a | |
| URL | n/a |
| Comments: |
| my foster sisters were both diagnosed with fas and they both have adhd. it's pretty hard on mom and dad. |
| Date | Tue Feb 09 1999 15:38:46 |
| Name | HATTIE M. KNAZZE |
| h.knazze@worldnet.att.net | |
| URL |
| Comments: |
| I am desparate to find any successful methods on teaching math to children with FAS. I have been working with his classroom teacher, his OT, ST, VT, social worker and psychologist for the past three years--most recently at Jamaal's IEP in January to develop and consistant and cohesive approach to this challenge. However, as in the past, I left not feeling very hopeful. Jamaal is a bright, loving, engagingly handsome 9-1/2 year old. He's always trying and I desparately want to help him succeed. He is in a cross-categorical classroom with 17 other special children, 1 teacher and a half-time teacher's aide, so there isn't much time nor other resources to try alternative methods--so his teacher says. I look forward to receiving your response, suggestions, help and encouragement. Thanks much, Hattie |
| Date | Fri Feb 12 1999 18:35:49 |
| Name | Margaret Freeman |
| Margaretfreeman@juno.com | |
| URL |
| Comments: |
| I'm a Grandmother of an 8th grader with ADHD. CP, and lately diagnosed with FAS. Her mother is in recovery. I need to know about the future Ashley now has. Is FAS progressive? Where do I go for help? |
| Date | Tue Feb 23 1999 03:50:52 |
| Name | Beth McHugh |
| bethm@srv.net | |
| URL |
| Comments: |
| I heard about a conference this spring in Boise, ID and wondered if you might have any specific information about it? Thanks. |
| Date | Wed Feb 24 1999 18:33:42 |
| Name | Leah Myers |
| leahmyers@yahoo.com | |
| URL |
| Comments: |
| I am a Harvard EdM student in the Risk and Prevention specialization, conducting a research project on FAS, looking at ways to use technology to compensate for learning needs. I would apprecitate any information on resources, especially on-line. Thanks! Leah |
| Date | Tue Mar 02 1999 15:39:15 |
| Name | Bethany Tetreault |
| bt1179@hotmail.com | |
| URL |
| Comments: |
| I am a student doing a report on Fetal Alcohol Syndrome and it's effects. I need as much information about your agency as possible and sent to me ASAP. I am also suppossed to call and talk with a representative from the agence also. If this is possible, please email me the phone number. Thank You |
| Date | Thu Mar 25 1999 12:36:39 |
| Name | Jolene Knapp, Coordinator, FAS Diagnostic Clinic |
| jknapp@spokanecounty.org | |
| URL |
| Comments: |
| Date | Tue Mar 30 1999 18:13:33 |
| Name | Karl Lusk, MDK Associates, Inc. |
| klusk@cube3.net | |
| URL |
| Comments: |
| Diane: PaschalmPhillips, through Ms. Cauthorn, has provided you with information about our firm. If you feel our consulting services may assist you in grants research, strategy development, and/or grant writing, please e-mail me, or contact us by phone at (502) 549-6619. Yours is truly a labor of love; there are a number of resoruces, both public and private funding sources, which you c ould access. Let us know if we can help. Karl Lusk, Jr., Development Director, MDK Associates, Inc. |
| Date | Fri Apr 02 1999 10:08:11 |
| Name | Pat Tevik |
| URL |
| Comments: |
| Date | Fri Apr 02 1999 10:09:31 |
| Name | Pat Tevik |
| tevik@oregoncoast.com | |
| URL |
| Comments: |
| Looking for help with adoptive daughter,has FAE |
| Date | Mon Apr 12 1999 15:16:27 |
| Name | James |
| URL |
| Comments: |
| Date | Thu Apr 15 1999 10:44:41 |
| Name | Diane Bauer |
| MYBEARHUG@aol.com | |
| URL |
| Comments: |
| Date | Fri Apr 16 1999 09:20:36 |
| Name | Debra Fields-Walker |
| df19@cornell.edu | |
| URL |
| Comments: |
| I adopted a child with FAE. She is now 15 years old and I have been unable to obtain community resources. Do you have information on FAE and the kinds of approved services they qualify for? |
| Date | Fri Apr 16 1999 22:33:31 |
| Name | Janice Webb |
| jwreno@madras.net | |
| URL | http://members.tripod.com/~upsetgrandma/ |
| Comments: |
| Raising Grandson with FAS, ODD, OBD, ADD |
| Date | Tue Apr 20 1999 14:21:47 |
| Name | Bronnie Vaughn |
| abar4u2@arn.net | |
| URL | under construction |
| Comments: |
| Thanks for your pages. After two weeks of stumbling research I made it to your site which offers some hope. I can't count the times I've asked lawyers and judges the question " Don't you think that the day my son was born his mother was drinking screwdrivers has something to do with his actions?". He was born in the Phillippines while I was in the U.S. Navy. Finally at the age of 29 and faceing 10 years in the Texas Dept. of Corrections for probation ( Burglary of a habbitation - he was caught taking the good back) violation (not reporting) he has been diagnosed FAE thanks to a family doctor who is one of those who care. Now my dilemma is finding an alternative that will satisfy the judge at his hearing.Of course the DA's office is the is who recomended the 10 yrs. ANY help appreciated! Bronnie Vaughn e-mail abar4u2@arn.net Yes I own a bar. Ain't That Ironic? |
| Date | Thu Apr 22 1999 18:28:30 |
| Name | Carolyn Koberg |
| dica@netins.net | |
| URL |
| Comments: |
| Great visiting with you Judy |
| Date | Fri Apr 23 1999 15:04:49 |
| Name | Karen Talbert |
| Karen.Talbert@otherbbs.com | |
| URL |
| Comments: |
| Date | Sun Apr 25 1999 11:06:25 |
| Name | sandra L hopkins |
| sandra_hopkins@hotmail.com | |
| URL |
| Comments: |
| I have obtained a client with fascet. I need some guidance in doing therapy and vocational I need guidance in working with a teenager with fascet. |
| Date | Wed Apr 28 1999 19:12:46 |
| Name | Jan Shupert-Arick |
| jshupert@whitleynet.org | |
| URL |
| Comments: |
| We have a foster daughter with FAS and need assistance in understanding how we can make the best of a difficult situation. |
| Date | Wed Apr 28 1999 20:27:02 |
| Name | Denise Costa |
| joelargo@aol.com | |
| URL |
| Comments: |
| I am the foster/adoptive mother of a 1 1/2 yr old with FAS and drug effects. I am looking for info on what is in store for us and what I can do to give him the best life possible. |
| Date | Sun May 02 1999 11:01:31 |
| Name | Martine 't Jong |
| M.L.tJong@kub.nl | |
| URL |
| Comments: |
| Date | Tue May 04 1999 16:16:20 |
| Name | Wendy M Stout |
| mystikgal6@aol.com | |
| URL |
| Comments: |
| send me info on workshops in NJ. |
| Date | Thu May 06 1999 13:09:46 |
| Name | Suzanne Lucier |
| smlthings@aol.com | |
| URL | none |
| Comments: |
| I am a single mom of three adopted FAS kids and one biological child. This is the first site I've seen that offers hope. After reading all your pages, I can see one real place to improve - get this house cleaned up!! It's the small things that seem to work. |
| Date | Fri May 07 1999 07:36:32 |
| Name | Ruth Bartlett |
| thepearl58@hotmail.com | |
| URL |
| Comments: |
| We have an adopted son who is 13 years old. His name is Anthony. We got Anthony a few days before his 5th birthday. We have been experiencing lots of problems and believe he may be a fetal alsocol child. We need help on where to go to find out and get help. Above is my sisters e-mail and you can go through her for any infomration that you can give. Thank you for your help. |
| Date | Mon May 10 1999 10:54:10 |
| Name | lindalee soderstrom |
| fastxfar@aol.com | |
| URL | none |
| Comments: |
| diane; i am happy to see you are up and running. we dream of inviting you to southeast minnesota sometime to train and speak. could you send the info about what your fees and per diem are.? how many audience members you like etc?? i taught 27 in community ed a few weeks ago[fas/e 101]. the next week over 125 nurses and nursing students in winona area all heard the 2 arc ladies from duluth. their message was one of warning and fear. yours is one of help making a difference, dare we say hope? fas/e should not be feared in the kids already here. by the way-jesse is almost 13yo. can you fathom??? lindalee soderstrom |
| Date | Mon May 10 1999 14:59:37 |
| Name | Kevin D. Barrow, M.Ed., LPC, DAPA |
| psychcounselor@worldnet.att.net | |
| URL |
| Comments: |
| Date | Tue May 11 1999 12:17:20 |
| Name | Kathryn Sauve. Lead Case Manager for New Dawn |
| benshe65@yahoo.com | |
| URL |
| Comments: |
| Hello..I am very excited to have found your web page. I am the lead case manager for a new and exciting program funded through the State of Minnesota. We have grown into a board and lodge facility for up to 12 chemically dependent women who reside with us for the duration of thier pregnancy to help reduce the risk of FAS/E. I would welcome the idea of sharing information with you regarding the services you provide and the referral process for our program. I am so very excited to have found this page...Thank you |
| Date | Tue May 11 1999 16:18:22 |
| Name | Mary Fitzgerald |
| ephesfitz@aol.com | |
| URL |
| Comments: |
| Date | Fri May 14 1999 13:09:50 |
| Name | Heather Bradfield |
| Bradfiel@dixie.edu | |
| URL |
| Comments: |
| I need help, My stepdaughter has FAS I love her but she is almost impossible to live with I need info about how to reach her, and make familey life bearable. |
| Date | Mon May 17 1999 19:53:00 |
| Name | Debbie Morris |
| motherhubbard5@juno.com | |
| URL |
| Comments: |
| Attended Diane Malbin's training in McMinnville OR and I am forever changed in my view of my children I only wish is that the training could have been more than a day. Would love to know about future trainings in my area. Thanks Diane you are a fabulous speaker. |
| Date | Wed May 19 1999 04:37:59 |
| Name | Diane Luna |
| Moon052@hotmail.com | |
| URL |
| Comments: |
| have adopted daughter 12 yr since birth, been previously diagnosed with ADHD, ODD, Bipoler, etc., recently someone mentioned FAS, and I looked up sites and discovered the behavior symptons fit her to a T, looking for info and support groups in my area, West Coast near Tampa, Florida. |
| Date | Wed May 19 1999 06:06:07 |
| Name | PENNY VALERO |
| SHRIMP2919@AOL.COM | |
| URL |
| Comments: |
| I AM LOOKING FOR INFORMATION ON THE LONG TERM EFFECTS AND IF THERE HAS BEEN ANY LONG GOING STUDIES FROM CHILDHOOD TO ADULTHOOD AND IF THERE IS INFO ON THEM TODAY |
| Date | Fri May 21 1999 20:31:35 |
| Name | susan paulk |
| susme48@aol.com | |
| URL |
| Comments: |
| found your site last night....and it seems quit helpful so far.....tho what i need is a way to do my research on this topic online, as i have no access to a library right now.....in 3 weeks i will legally become the step mother of a 12 yr old with fas.....and i am concerned with him , about him, and for him.....i would like to see his education begin to encompass more than basic colors and numbers since he is 12, and apparently quite bored with them.......i want to be able to do all that is possible to do to help at home this summer, while there is no school....i do not want to see this beautiful young man slip between the cracks of a country school system that does not know what to do with him........in the last 12 years he has lost so much that many of us take for granted.......and i do not want him to keep losing.....i am determined that he will learn to talk......i know that he knows what he wants to say and express......and i believe he knows the words to say it...now all he needs is a way to do it.....a way around his lack of verbal skills ........thank you for giving me hope |
| Date | Sat May 22 1999 15:59:00 |
| Name | Melissa Hradecky |
| killawave@earthlink.net | |
| URL |
| Comments: |
| Date | Mon May 24 1999 08:05:09 |
| Name | Denise Costa |
| joelargo@aol.com | |
| URL |
| Comments: |
| Adoptive mother of 21 month old looking for help. |
| Date | Wed May 26 1999 21:14:15 |
| Name | Pamela Spier-Edmond |
| ps24823@navix.net | |
| URL |
| Comments: |
| Date | Thu May 27 1999 17:08:10 |
| Name | Patty Noonan |
| pattymac8@aol.com | |
| URL |
| Comments: |
| thanks for being here! |
| Date | Mon May 31 1999 12:34:22 |
| Name | Melody Killens |
| garyk@columbia-center.org | |
| URL |
| Comments: |
| I was just thinking about all of you and thought I would stop in and say Hi!!!! Melody Killens |
| Date | Thu Jun 03 1999 16:32:54 |
| Name | Margaret Murch |
| Margaret@FASTrust.freeserve.co.uk | |
| URL | no web site yet! |
| Comments: |
| Only U.K.(I'm from Liverpool) resource for carers of children with FAS. I am the adoptive mother to Kerry who is nearly ten. Kerry has FAS, precocious puberty(desperate for info)she is being treated with Zoladex depot injections, Kerry also has behavioural problems.When kerry came to us nine and a half years ago no info was available to parents of these kids. Did my own research, now lecture in colleges, to social workers, and medical professionals. I shouldn't have to do this, I should be able to devote all my time to Kerry. But someone has to stand up and shout for our kids. If the professionals who are supposed to support the carers won't do it, we will have to do it ourselves. Oops fell off my high horse again! |
| Date | Tue Jun 29 1999 23:17:05 |
| Name | Kelli Giles |
| klcg@hotmail.com | |
| URL |
| Comments: |
| Date | Sat Jul 03 1999 17:59:41 |
| Name | Robert W. Jones |
| rjones@accessnw.net | |
| URL |
| Comments: |
| Date | Sun Jul 04 1999 14:49:03 |
| Name | Della Maguire |
| della@ns.sympaico.co | |
| URL |
| Comments: |
| very interesting need more of this |
| Date | Tue Jul 06 1999 02:36:14 |
| Name | Becky |
| bawanna44@aol.com | |
| URL |
| Comments: |
| This is a great site for everyone, I commend all of you on what you do to help those who are in need |
| Date | Tue Jul 06 1999 18:02:47 |
| Name | Suzanne Houde |
| grisou@capescott.net | |
| URL |
| Comments: |
| Date | Wed Jul 07 1999 10:49:36 |
| Name | Gayle |
| GBFairview@aol.com | |
| URL |
| Comments: |
| I have a brother-in-law, now 36 yrs w/FAS--Help! |
| Date | Thu Jul 08 1999 20:47:20 |
| Name | Melinda Jones, B.A., L.S.W. |
| mlndjones@aol.com | |
| URL |
| Comments: |
| I am a therapist, working with youth from 8 to 13 years of age. I appreciate the site as a resource. I would love to hear from other therapists and parents who have found successful ways to help these children. |
| Date | Mon Jul 12 1999 17:55:24 |
| Name | Linda Rosenbaum |
| lindarosenbaum@hotmail.com | |
| URL |
| Comments: |
| I heard Diane speak in Toronto when my son was first diagnosed with FAS in 1993 or 94 when he was in grade one. He has now finished grade 6 (sad to say, unsuccessfully). Diane was a great inspiration to me at the time I heard her speak. Though we have been getting a lot of professional help with our son in the past six years, life is ever difficult, and I continue to seek more and learn more. I just discovered your website, and hopefully, it can lead me to new paths and renewed hope. |
| Date | Sat Jul 17 1999 15:33:24 |
| Name | Sue Heinle |
| sue@neumedia.net | |
| URL |
| Comments: |
| I had a niece who I think had FAS or FAE. She was diagnosed as having Cerebial Palsey. I have read things about FAS that lead me to believe she was FAS. Her mother drank quite a bit during her first trimester. |
| Date | Tue Jul 20 1999 08:42:29 |
| Name | CORINNE BARNWELL (boston MA) |
| barnboston@aol.com | |
| URL |
| Comments: |
| Great site, and much needed! Thanks to you two. |
| Date | Fri Jul 23 1999 13:00:23 |
| Name | Lisa Hutchings |
| dino5472@aol.com | |
| URL |
| Comments: |
| Date | Sun Jul 25 1999 16:44:48 |
| Name | Mary Hibbard |
| ndnbbs@aol.com | |
| URL | www.jps.net/laclassified/myheart |
| Comments: |
| Thanks for the wonderful work you do! |
| Date | Fri Jul 30 1999 21:44:08 |
| Name | Robin Creiger |
| Jelibeene@aol.com | |
| URL |
| Comments: |
| We are almost to the finalization of adoption of a 13 yr. old with FAS and PTSD. We would any information or suggestions how to reach this young man on a positive and educational way. And any types of positive learning discipline examples will be greatly appreciated. Thank you for this wonderful site |
| Date | Tue Aug 17 1999 10:20:25 |
| Name | Will H. Burrow |
| willburrow@aol.com | |
| URL | http://member.aol/wbmaine |
| Comments: |
| Date | Fri Aug 20 1999 11:25:56 |
| Name | Darlene Marquardt |
| dmarquar@orednet.org | |
| URL |
| Comments: |
| making sure I know what you have on all your sites. Will be in contact with you soon. |
| Date | Tue Aug 24 1999 12:50:29 |
| Name | Kim Feist |
| kim3@telusplanet.net | |
| URL |
| Comments: |
| This site was giving to me by Donna Debolt and I am so glad she gave me this site for now i can start to understand and it sure has help me see my son differently and it has taken some of the pressure for before i felt i was in the dark not knowing what it was i was looking for,but now its opened my eyes. Thank You so much for all the information i have found on your site. |
| Date | Sat Sep 18 1999 12:52:07 |
| Name | |
| URL |
| Comments: |
| Date | Fri Sep 24 1999 10:21:29 |
| Name | Mary Hibbard |
| ndnbbs@aol.com | |
| URL |
| Comments: |
| THANKS! |
| Date | Mon Sep 27 1999 20:00:42 |
| Name | Angie |
| pearl346@yahoo.com | |
| URL |
| Comments: |
| Date | Wed Sep 29 1999 07:35:30 |
| Name | |
| croppj@fascets.org | |
| URL |
| Comments: |
| This is a test |
| Date | Thu Sep 30 1999 08:44:07 |
| Name | Peggy Keithcart |
| pkeithcart@compuserve.com | |
| URL |
| Comments: |
| I am an RN and a CASA(Court Appointed Special Advocate) for abused and neglected children in the court system. I deal with children with FAS and find no local support groups for parents. |
| Date | Mon Oct 04 1999 19:48:41 |